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A story about how those with invisible disabilities are treated on United Airlines.

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Eat your SOUL!
Dear United Airlines,

I recently had the misfortune of booking a flight on your airline. Flight 844 to fly from Seattle, Washington to San Francisco, California from 11:51am-2pm on April 5, 2010. I say misfortune because the events of that flight have left such a poor taste in my mouth and horrible feelings in regards to the personnel working for you that I highly doubt myself or any of my friends, family, and acquaintances will every use your airlines again.


I'm a disabled woman and have been since suffering a spinal injury in June of 2004. I've flown on a handful of airlines when I've been required to make a trip longer than an hour by car, and more often than not, I've had to fly alone and met up with my other companions at our destination. Over this time, I've become familiar with the process someone like me has to go through when it comes time to fly. So upon arriving at the airport in Seattle on April 5, 2010 and finding no sky-caps on duty, a friend of mine and I went inside to the ticket counter to ask that a wheelchair be called. My friend had to leave to get back where we'd been staying in order to pack up, so she helped me put my stuff where I'd been told to wait and left.

After fifteen minutes, an elderly couple joined me and within five minutes, a wheelchair had come for that woman while I was still waiting. I gathered my stuff and went back to the counter to find out what was going on and to point out that my flight would be leaving soon. The woman assured me the wheelchair was on their way, so I went back to sit and wait. When two wheelchairs arrived, both of them passed me completely and went to another elderly couple. One of them was about to leave when the man told them he didn't need one, but I flagged him down and told him he was there for me.

After getting it verified that yes, he was there for me, we were off to the security point where I was dumped and left to make my way through on my own while the man pushing me went to the other end and stood watching. That was awkward and more than a little painful, especially since the exertion induced a hot flash, but I was more concerned with making my flight, so I did the best I could. Once we'd made it to the gate, he attempted to dump me off there, but I told the counter I couldn't make it down the ramp without that assistance and he had to stay. Unfortunately, he wasn't making it difficult to tell he wasn't thrilled with that, but he didn't openly complain where I could hear. Frankly, I didn't care about that so long as he got me to the plane, so instead I focused on telling the ticketing agents at the gate that I would need a wheelchair waiting for me in San Francisco. The ticketing agent assured me she was putting that note in for me and I was wheeled down to the plane.

The wheelchair left me off at the door and after making sure I had all of my belongings, he turned around and left. I boarded the plane and made my way back to my aisle seat where I set down my special seat cushion and lumbar brace before looking around for a flight attendant to help me put my luggage in the overhead compartment. The attendant standing in the front section of economy was a blonde woman probably in her late 40s-50s and I called her over to explain that I needed her assistance because I wasn't capable of lifting my luggage due to my disability. To my surprise, the attendant rejected my request while excusing it by saying: "If I helped everyone do that all day then MY back would be killing me by the end of the day!" I asked her how I was supposed to get my luggage stowed and her answer was: "You'll just have to wait for someone from your row to come back here and ask them to give you a hand." When I asked what would happen if no one would, her response to me was: "Well, normally a passenger is around to overhear something like this and they'll offer to help with it on their own. You'll just have to ask someone when they get back here." Then she turned back around and went up to the front seats where she waited to "assist" other passengers.

I was completely flabbergasted, but with no other option, I sat down to wait and pulled my carry-on suitcase as close as I could to try to get it out of the way of the aisle. As I'm sure you're aware, however, your aisles are considerably narrow and even my best efforts left half of even my small carry-on suitcase in the aisle. What's more, rather than help me, most of the passengers simply knocked into my suitcase and shoved past me on the way to their own seats. Every time they hit the suitcase, it in turn hit me and jarred my back more and more with each strike. The plane wasn't even half boarded and it already felt like the pain medication I'd taken less than a half hour prior to entering the airport had worn off as though I hadn't taken it at all. Finally, it was too much and I dropped my suitcase down into the aisle to stop the flow and ask one of the men passing me for help before he went looking for his seat. As he was lifting it, he asked me if I was all right and I told him about my injury. He apologized profusely for my condition and tried to make me feel better by assuring me I would be okay eventually. I doubt either of us believed it, but at that point, it was nice to hear that, even from a total stranger.

The flight itself was mostly uneventful, except for the screaming headache that started up even before take-off courtesy of a family with several young children sitting about three rows behind me. Adding that to the increasing pain in my back, I did something I don't normally do and asked for a Jack Daniels with my soft drink. The flight attendant gave me a disapproving look, but I was in too much pain and too aggravated at that point to bring myself to care or respond to it in any way. I put in my headphones, drank my whiskey and coke, and did my best to deal with it.

When we landed, the gentleman who'd helped me before actually called up to me from two rows back that he'd pull my carry-on down when he reached my row. I thanked him again for being so much help and he again tried to make me feel better by hoping I'd recover from my injury soon. With all my luggage in hand, I headed for the front of the plane and stepped out to see there was only one wheelchair. And, of course, that wheelchair was for the elderly woman who had been on the flight.

I told both the flight attendants as well as the wheelchair attendant that there were supposed to be two as I was also disabled and had specifically put in my request that there be one to meet me at the gate. The elderly woman was loaded up and taken away while they called to get another chair brought around for me and I was left waiting on the ramp. And while I am very much aware that the wheelchair service is provided through the airports or hired by outside services, it's still very much the responsibility of the airline to have one there when I've made it clear that I'm disabled and require one ahead of time.

After ten minutes of waiting, I turned to the United staff woman waiting to take one of the flight attendants to a surprise breathalyzer exam and asked her who I would need to speak with in order to file a complaint regarding all the issues I'd thus far experienced. She told me I had the option of either going online to file it or going to the United customer service desk in the airport to make the complaint in person. Originally I planned to go online after I arrived home to write my complaint, but after another ten minutes had passed without a wheelchair putting in an appearance, I changed my mind. With my back throbbing and my spine sending jolts of pain from the base all the way to the top of my head with every move I tried to make, there was no way I was going to let this go without informing your staff of what I'd gone through on this flight.

The wheelchair finally arrived and I asked the woman pushing me to take me to United's customer service where I waited my turn and informed the counter agent exactly what I'd been through. She listened to me, but told me that all I could do would be to either write a letter or speak with one of the supervisors. I told her I wanted to speak with a supervisor and handed over my ID and flight information and while she was typing and asked if I had a legitimate reason for the wheelchair, I even pulled out my disability placard. I asked if she needed to see the paperwork that went with it to verify that it was indeed my placard and that I really AM a disabled person rather than someone wandering around with a family member's because I run into that problem all the time. She told me that wouldn't be necessary and then asked again if I was sure I wanted to speak with a supervisor as it would likely take time for one of them to come down. I told her again that yes, I was sure. I would wait until the supervisor came down because this was a very serious issue to me.

She finally relented and called to ask for a supervisor to come down and motioned to the area next to customer service for me to wait. Rather than go there, however, the woman pushing my wheelchair just pushed me about three feet away and stopped to wait. From my position there, I was able to overhear the two calls made to the desk where the supervisor they called to come down couldn't make it and had passed the responsibility to a supervisor named Dina. In turn, Dina called down to the desk and asked if it was really necessary that she come down to speak with me. I'm sure they thought they were being discreet, but I was close enough to hear the customer service agent tell her it involved "a girl in a wheelchair waiting to make a complaint" and "no, she wants to speak with someone instead of going online." Apparently it as enough because after she hung up, she spoke up to me and told me Dina was on her way down and would be there soon.

Dina arrived a short time later and the conversation that followed was one if the most upsetting and frustrating ones I've experienced during my disabled "life." It was obvious to me from the beginning that it was going to be a difficult conversation when the first words she said to me were spoken in a very condescending and put-out tone: "They've already told me basically what you want, but why don't you tell me what happened?" Rather than say anything about her tone, I instead told her exactly what had happened from my first arrival to the airport in Seattle all the way down to my arrival at the customer service desk there at SFO. As it turned out, my gut-feeling that the conversation would not be pleasant were well and truly proven beyond any shadow of a doubt with the next words out of her mouth.

"I won't apologize for her actions and I'm not sorry for what happened to you. It's not in our contract to assist passengers with their luggage and we reserve the right to refuse assistance to anyone. If that's what you need, then perhaps in the future, you should make other travel arrangements."

If you think I don't remember exactly what was said to me, let me assure you that when you become disabled, there are certain things that happen or are said that burn themselves into your brain because they're so hurtful and upsetting that they do nothing but replay in your head over and over. Believe me, I remember everything Dina said to me and exactly the way she said it.

Things went downhill from there because I pointed out that being disabled, I required assistance and Dina said that I obviously should have asked the person pushing the wheelchair for me to come on and load my luggage. She even turned to the woman pushing me now and asked her if she'd every followed a passenger on board to assist them with luggage. The woman pushing me flat out said: "No, that's the stewardess' job." That seemed to take the wind out of Dina for a moment, but she recovered quickly and repeated again that she wasn't sorry for what happened to me.

This time, however, she added: "It's not actionable. She won't even get a slap on the wrist, so there's no recourse for you in this situation." I was getting more and more upset with every word she said and I asked her if that meant it really was company policy to depend on their other passengers to provide assistance to the disabled. Dina's answer was: "Normally another passenger will step in and help, yes. If you have troubles, you really should ask them." I was unaware that it was company policy to depend on complete strangers who are in no way affiliated with United to provide my disability assistance while I'm on your airline.

At this point, Dina was getting more and more irate with every question I asked regarding United's disability policies and my accusations of discriminating against me to the point of telling me I needed to make other travel arrangements. She accused me of not listening to anything she said, but I cut her off and told her that I understood her perfectly, she was only repeating herself. I repeated her words that I had "no recourse" and that the lack of help "wasn't actionable." In addition, I repeated that she'd said several times she wouldn't apologize and wasn't sorry for what happened to me because it "wasn't in their contract to provide assistance." All Dina said in answer to that was that I had the option of writing a letter which I told her I had every intention of doing since coming to file a complain in person turned out to be completely futile and a waste of time, energy, and emotional wellbeing. I also told her I'd be mentioning her and the fact that the combined actions of everyone I'd encountered from United had guaranteed I wouldn't be flying with you at any point in the future.

Dina quite literally turned up her nose at me at that point and said: "You, of course, have the option to choose who you want to fly with, but again, it's not in our contract. Besides, there's a note that says your bag was heavy." I cut her off before she could say more and asked her who it was that said that. She told me it would have had to be someone at the ticket counter in Seattle, and I flat out told her that was amazing considering that there wasn't a single, solitary person involved with United at either airport who'd laid a hand on my bag. Not one. So not only was I dealing with the immensely upsetting experience of being told it was my own fault I was in pain for not making arrangements to fly without luggage since I knew I was disabled and needed assistance, I was also dealing with having someone lie about the weight of my luggage in some sort of bizarre effort to explain their lack of help. I hope you're able to appreciate how much more this upset and angered me.

I took the information for where to write a letter of complaint and told Dina I was leaving since it was very clear I wouldn't be getting anything else that was useful. This made her angry again and she again accused me of not listening to her, so "this conversation is over." My response to her was: "You're right, it is over because all you've said to me is that even though I'm disabled, it's my responsibility to ask a random passenger to help me with my bag and hope they say yes, otherwise I'll get no help. Also, you won't apologize and you aren't sorry for what happened or that I'm in pain because it isn't in the flight attendants' contracts to assist me with my carry-on luggage. It's my fault for not making other arrangements knowing that I'm not able to lift anything heavier than a purse or laptop and I have no recourse beyond writing a letter of complaint. But you haven't done anything wrong, so I shouldn't expect an answer any different from the one you've given me."

Then I looked over my shoulder at the woman pushing my wheelchair and told her "I need to go." Thankfully, she seemed to understand just how much I didn't want to cry or yell, because she did indeed push me away immediately.

Originally, I had intended to take BART so I could save money getting home. My carry-on had wheels, so I would be able to push it onto the train so long as I only stayed on one level and one of my roommates would meet me at the station to take it from me and help me home. However, I was in so much pain and so close to just breaking down and sobbing that I changed my mind and asked to be pushed to the taxi area instead. It was a $45 ride home, but it was faster than BART and took me right to my house where one of my roommates was waiting outside to take my luggage from me and get it and me into the house.

I'd barely made it in before I was unloading everything that happened to me to their complete amazement. All of them put in their encouragement that I write this letter in addition to contacting the American Disabilities Association. And yes, they are also going to receive a copy of this letter as is Aviation Consumer Protection and Enforcement.

I might be 29 years old, I might have colored hair, and I might not be obviously disabled, but I am a legitimately disabled American citizen. Your airline had no right to treat me the way it did and your customer service supervisor was disturbingly rude to me in the face of my experience. I wasn't being unreasonable, I never swore, and I didn't raise my voice. I was trying my best to be polite and calm and I expected no less than the same courtesy in return. The fact that I didn't receive it and instead was made to feel as though I was just being lazy and irresponsible is beyond infuriating. I have to deal with Worker's Compensation and Disability about my age enough, the last thing I expected or needed was to have to deal with it from your airline when flying is already a painful enough experience.

Believe me when I say that neither myself nor anyone I know will be using your airline or affiliates in the future and if this is an example of the quality of your customer service, I doubt I'll be the last person making a complaint of this nature.

Sincerely,
Rachel D.

ETA: I really want to thank every single one of you who's replied and passed this on through your blogs, journals, Facebooks, and Twitter. You're more than welcome to share this because I don't want anyone else to have to experience this kind of discrimination. It's painful, embarrassing, and completely degrading. I'm going to pursue this in an effort to make sure it doesn't happen to anyone else. So all the good vibes and help I can get are very much welcome.

ETA-Part Two: Oh wow... I'm going to try really hard to respond to everyone who's commented. It just might take a little while. And thank you so, SO much for helping point me to places I should submit my experience. It's already been sent to The Consumerist and I'm working to submitting it to the others. Thank you so much again. It's amazing to see so much support after just how little I've had since I was injured.

  • Feeling: infuriated infuriated
<input ... >

Comments

( 414 Lemons — Shake the Lemon Tree )
Page 6 of 14
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[info]

pocochina wrote:

Apr. 12th, 2010 11:51 am (local)
I'm here via Twitter. I'm so angry you were treated so badly, and I certainly won't be flying United any more.
[info]

redstapler wrote:

Apr. 12th, 2010 11:53 am (local)
Two of the nastiest, most despicable relatives of mine worked for decades for United. One of them in management.

Your story, sadly, doesn't shock me.

But it does anger and enrage me.

I hope they choke on this.

[info]

rob_t_firefly wrote:

Apr. 12th, 2010 11:54 am (local)
Here via retweets on Twitter. I'm terribly sorry you had to go through that, and I totally applaud you for getting your message out. Hopefully this will end up not only with United making good with you personally, but preventing anyone else from having to go through such awful treatment at their hands.
[info]

essene wrote:

Apr. 12th, 2010 11:55 am (local)
I'm sure someone else has linked you to this, and that you even know about it, but they've definitely violated a few of the provisions on this list:

http://airconsumer.dot.gov/publications/disabled.htm

Specifically:
Airlines are required to provide assis­tance with boarding, deplaning and making connections. Assistance within the cabin is also required, but not extensive personal services. Where level-entry boarding is not available, there must be ramps or mechanical lifts to service most aircraft with 19 or more seats at U.S. airports with over 10,000 annual enplanements.

I'd say they definitely didn't comply with that first sentence.

and

Airlines must make available specially-trained “complaints resolution officials” to respond to complaints from passengers and must also respond to written complaints. A DOT enforcement mechanism is also available.

And if Dina is a "specially-trained 'complaints resolution official'" I'll eat my shoes.

So sorry this happened to you. May your future travels be much better.

[info]

morbidmouse wrote:

Apr. 12th, 2010 11:56 am (local)
Got directed here by the outcry on Twitter.

I know I'll be saying the same as many people before, but this is appalling. They treated you in an unacceptable and degrading fashion and you kept your temper better than I would have been able to.

Both my Grandfathers were "obviously disabled" and whilst we were fortunate enough to often encounter helpfulness and compassion from staff, it is all too frequently that situations like this occur.

Thank you for being brave enough to continue with action, I hope many can benefit from what must have been an awful experience for you.

[info]

twinkelbelpeach wrote:

Apr. 12th, 2010 11:57 am (local)
I've never flown with United, and now I know that I never will. What inexcusable idiots. Re-tweeted your message and hope it bites them.
[info]

kerrikins wrote:

Apr. 12th, 2010 11:59 am (local)
Also here via the word spreading on Twitter. Their behaviour was unconscionable, and I've retweeted the message. Looks like they've even said they're 'looking into it', to which I say they better be. I'm so sorry you had to go through that experience.
[info]

brewsternorth wrote:

Apr. 12th, 2010 12:00 pm (local)
Here via various retweets on Twitter. I'd gained the impression (having been at one stage a frequent transatlantic flyer) that United was not to be relied on, but that experience of yours goes beyond the pale. I have no words. I've retweeted and spread the word; United is apparently looking into the matter. Hopefully this can be made good in the present and prevented in the future.
(Anonymous) wrote:
Apr. 12th, 2010 12:01 pm (local)
HUGS
I will repost this. And I promise you I will never fly United again. What they did is beyond insult and needs to be fought.
[info]

karinberry wrote:

Apr. 12th, 2010 12:02 pm (local)
Followed a link from facebook... I've never taken United, to my knowledge, but that's just because other airlines were cheaper or more convenient. In the future, I'll avoid United at all costs. What a clusterfuck. I really hope your words reach the ears of someone who cares. I have a feeling Dina was doing her best to belittle the situation so you didn't think you had legal grounds for any recourse, but really, how hard would it have been for her to apologize and acknowledge your suffering and offer some sort of compensation for your trouble? She made a bad situation much, much worse. It makes me sick to see that happen, and it is unfortunately all too common, these days. Good on you for speaking up!
[info]

maxineofarc wrote:

Apr. 12th, 2010 12:37 pm (local)
My guess actually is that she didn't apologize specifically because that can be seen as admission of liability.
[info]

kuwdora wrote:

Apr. 12th, 2010 02:13 pm (local)
I'm going to add a warning not to read the comment section. It is full of major fail.
[info]

empress_donna wrote:

Apr. 12th, 2010 12:07 pm (local)
I am shocked to hear that an airline would treat a disabled person in such an awful manner.

I know that after reading this letter that I would certainly not use this airline.

[info]

javagoth wrote:

Apr. 12th, 2010 12:09 pm (local)
Holy shit!!! That's the WORST airline story I've every read! I'm glad I don't fly much - particularly given that I'm a large woman.

The letter needs a bit of editing in spots (letters left off words and such). If you have time to edit it before sending it off, that would be good. I really hope it gets some response.

It would be bad enough if one person had treated you that way, that so many people were assholes your direction is really discouraging and embarrassing. People should be ashamed of themselves for being such self centered asshats!

I really hope you are feeling better soon and that future trips go better for you because of having the courage to speak out!

{{{{{{{{{{ gentle hugs }}}}}}}}}}}}}

(Anonymous) wrote:
Apr. 12th, 2010 12:10 pm (local)
I am so sorry that this happened to you. I hope that you speaking out allows no one to every experience this again.

The only thing that I wanted to say different is that just like you want to be treated with respect, I wish you hadn't said that about the family traveling with young kids. The fact is people have children and the need to travel, too. Unless they were being downright rude, I wish we could all quit looking at each other as annoying, inconveniences and love each other better.

Which, i think, would have cleared up how ridiculously awful you were treated, too!

[info]

evilpuppy wrote:

Apr. 12th, 2010 02:30 pm (local)
Thank you so much and more than anything I'm trying to ensure that this doesn't happen to anyone else. I at least have an amazing support system who've helped me accept my limitations and encourage me to fight back when things like this happen. Someone else might not be so lucky.

I did want to respond to you to add that normally I have absolutely no problem with families flying. Kids have that problem with popping their ears, so of course there's going to be some upset and crankiness. Honestly, even with the fact that the parents were letting their kids holler in the cabin and wander in the aisles wasn't the big issue.

The only reason I mentioned it at all was that already being in pain, it was just an exacerbating factor to heaping on more. Uncontrollable in that there's a certain degree you just accept as natural, but on top of everything else, it just started a war between which could throb more: my spine or my skull.

If I hadn't already been dealing with my back, I wouldn't have been bothered beyond a few thoughts of wishing the parents were more attentive to wandering kids in an airplane before I went back to doing whatever I'd been doing.

[info]

51stcenturyfox wrote:

Apr. 12th, 2010 12:10 pm (local)
OMG, here from a friend's link. I'm showing this to a buddy who is a flight attendant and senior union member at a different airline. It's a competing airline, but passing this around could help other people receive the service and courtesy to which they're entitled.

Dina didn't care, but we do.

[info]

woofiegrrl wrote:

Apr. 12th, 2010 12:11 pm (local)
I see Consumerist has posted your story! I don't have an account there, or I would comment on this:

"Evilpuppy, who says she's disabled"

OH NO THEY DIDN'T. How about:

"Evilpuppy, a disabled woman"
"Evilpuppy, who uses a wheelchair"
"Evilpuppy, a blogger with a back injury"

OH SHIT.

BTW, did you see on Twitter that @UnitedAirlines has responded? (It's directed to me, @etoile, but it's about your issue.)

[info]

gygaxis wrote:

Apr. 12th, 2010 12:32 pm (local)
Just finished sending the author of the consumerist post a difficulty polite and nice email explaining as best I could why that language is problematic in as friendly a manner possible as to hopefully just get a point across without making anyone feel attacked or getting defensive.
(no subject) - [info]

woofiegrrl - Apr. 12th, 2010 12:34 pm (local) Expand

[info]

gygaxis wrote:

Apr. 12th, 2010 12:13 pm (local)
Thank you for sharing such a reasoned and detailed account of your position on this. My significant other and to a far lesser extent myself both suffer from chronic injuries that to varying degrees will permanently restrict our own ranges of motion and physical capabilities and I'd hate to have her go through the same experience that you described. I'm better for wear than she is (her injuries were a hell of a lot more severe) but in the handful of months that my mobility was severely limited in either a wheel chair or on crutches made me so much more appreciative of the subtle hardships that go unnoticed by so many privileged by able bodies. I will make a point of paying close attention to United's follow up on this because if they don't redress this with you properly I also have absolutely no faith in their ability as a service provider to offer anything of value to myself or loved ones. Again, thank you for sharing your story and warning everyone at large about the reprehensible manner you were treated in, I'm sure the extra effort you've made in doing so has saved a lot of other people from having to go through this same experience. Don't worry about getting back to the comment on this in specific, you don't owe me any time or attention, I just wanted to express my gratitude for how you chose to spend your own time and hope that United does right by you soon. And if there's anything that would resolve your injury and return you to a painfree life in that regard, I'm hoping for that too ^_^
[info]

nnwest wrote:

Apr. 12th, 2010 12:13 pm (local)
Grr.

Here via [info]

neadods, and I will be spamming this everywhere I can!

[info]

hippediva wrote:

Apr. 12th, 2010 12:15 pm (local)
I do hope that you have retained a lawyer and plan on taking this case to court. I'm sure that there are lawyers aplenty here on LJ who would be happy to take your case pro bono. *hugs* I too have serious back issues that aren't immediately obvious and the way so-called 'people in charge' behave deserves nothing less that termination and legal fees. Good luck to you.
[info]

telosphilos wrote:

Apr. 12th, 2010 12:16 pm (local)
I was directed here by a friend who knows I have a child with a less visible disability. I emailed a link to The Consumerist which might help.

Why would anyone care that you have pink hair? I mean really when you can't work anyway for whatever reason, what does it matter what color your hair is? Interesting hair colors are fun.

(Anonymous) wrote:
Apr. 12th, 2010 12:21 pm (local)
Department of Justice--ADA Information Line
www.ada.gov

The U.S. Department of Justice provides information about the Americans with Disabilities Act (ADA) through a toll-free ADA Information Line. This service permits businesses, State and local governments, or others to call and ask questions about general or specific ADA requirements including questions about the ADA Standards for Accessible Design.

ADA specialists are available Monday through Friday from 9:30 AM until 5:30 PM (eastern time) except on Thursday when the hours are 12:30 PM until 5:30 PM.

Spanish language service is also available.

For general ADA information, answers to specific technical questions, free ADA materials, or information about filing a complaint, call:

800 - 514 - 0301 (voice)

800 - 514 - 0383 (TTY)

[info]

mllesays wrote:

Apr. 12th, 2010 12:23 pm (local)
Here via a friend's linkspam.

Goodness, how terrible. I'm so sorry you had to go through this. I can say with certainty that I won't be flying United Airlines anytime in the future, if this is how they treat their passengers.

aaaa

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